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2001 Beacon St, Ste 204, Boston, MA 02135

Provides personalized support, information, resources, and connections for individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases

2700 Horizon Dr, Ste 120, King Of Prussia, PA 19406

Offers information and resources on Frontotemporal Degeneration to caregivers, healthcare professionals, and the public through its website and helpline, including information on treatment, support, and advocacy.

Address unavailable

Provides information and referrals relating to cancer and cancer treatment.

151 Centennial Ave, Piscataway, NJ 08854
Provides a free, confidential peer counseling and support helpline for caregivers of individuals with Alzheimer's disease and related dementias. Offers emotional support, education, problem-solving assistance, caregiver coaching, resource information, and referrals. The program is part of the COPSA (Comprehensive Services on Aging) Institute for Alzheimer's Disease and Related Disorders at Rutgers University Behavioral Health Care.
30 E 33rd St, New York, NY 10016

Provides educational resources on kidney and urological disease for patients, families, and professionals. Services include peer support line, information on dialysis, nutrition, organ donation, and a health guide.

1805 Moriah Woods Blvd, Ste 3, Memphis, TN 38117
Provides information and assistance for the prevention of stuttering in young children and treatment for teenagers and adults, including referrals to qualified medical practitioners for specialized care. The foundation also supports research and education about stuttering.
23 Alexander Ave, Madison, NJ 07940

Provides information and education on the development of blind and visually-impaired children. Families may receive telephone support and network with other families. Also sponsors seminars, trainings, meetings, and social events.

3 International Dr, Ste 200, Rye Brook, NY 10573

Provides individuals diagnosed with blood cancer support resources and educational information. Resources include: access to information specialists; support groups; caregiver, peer-to-peer, and financial support; a patient community, online chats, and a podcast; nutrition consultations; and clinical trials. Also conducts research on cures.

250 West 64th St, New York, NY 10023

Provides a long-standing heritage of addressing the needs of people who are blind or visually impaired. This includes those with multiple disabilities or chronic medical conditions.

American Cancer Fund, PO Box 7262, 08844

Provides a web-based resource center that provides cancer educational material for newly diagnosed cancer patients and their families. Allows users to better understand risks and be prepared.

Baltimore, MD 21297

Provides an online resource for education, awareness, and mutual support for those affected by depression, their families and friends, and those who think they might suffer from depression.

9000 Rockville Pike, Bethesda, MD 20892
Online resource center for a wide variety of consumer-based health and drug related information. Users can search for health topics such as; Health conditions by body location/system, Common diagnoses and therapies, Health and wellness, Prescription drugs, Over-the-counter medicines, Dietary supplements, Herbal remedies.
1 Bethany Rd, Bldg 1, Ste 5, Hazlet, NJ 07730
Provides information, education, advocacy, research resources, and support for individuals affected by Turner syndrome. Delivers educational materials, healthcare information, webinars, school-related resources, caregiver support, peer connections, referrals, and access to patient registry and research opportunities that promote awareness, early diagnosis, and improved health outcomes.
825 Georges Rd, 2nd Fl, North Brunswick, NJ 08902
Provides community-based education and professional training that increase awareness, strengthen prevention, and improve outcomes for individuals affected by brain injury. Delivers workshops, school-based presentations, and specialized trainings for professionals that promote safety, early identification, and effective response, while supporting informed decision-making, community stability, and long-term well-being.
304 Valley Blvd, Wood Ridge, NJ 07075

Provides services that include support groups for consumers and families. This includes information on how to access mental health resources, advocating for improvements via legislation, and a 12-week family education program.

2451 Crystal Dr, Ste 900, Arlington, VA 22202

Provides comprehensive information and education about diabetes for individuals with prediabetes, diabetes, health professionals, educators, and the general public. Resources and learning materials are accessible through the organization’s website.

1 Robert Wood Johnson Pl, New Brunswick, NJ 08901

Provides public health education to help reduce the risk of Sudden Infant Death Syndrome (SIDS). Also hosts a support group for affected families.

111 Central Ave, Bldg C-8, Newark, NJ 07102
Offers state-funded comprehensive screening services for breast, cervical, prostate and colorectal cancers for low-income and inadequately insured NJ residents. Services include education, outreach, early detection, case management, screening, tracking, and follow-up. These cancers can be treated more effectively when found early.
20 Chapin Rd, Suite 1010, Pine Brook, NJ 07058

Provides group prenatal information sessions and social support to pregnant women.

197 Rte 18 S, Ste 206 North, East Brunswick, NJ 08816
Provides information and referral, advocacy, counseling for individuals and groups, scholarship program, campership program. Providing insurance assistance for persons with hemophilia and other clotting deficiencies, emergency financial assistance, public education/speakers bureau, legislative advocacy, hematology fellowships, research grants, and outreach efforts for undiagnosed persons with bleeding disorders.
5775 N Glen Park Rd, Ste 201, Milwaukee, WI 53209

Operates a match-making service that matches individuals with mentors who offer peer-based emotional support and shared understanding through personal experience.

537 Nicholson Rd, Audubon, NJ 08106

Provides the development and implementation of innovative strategies aimed at enhancing the lives of adults with disabilities. 

703 Main St, Paterson, NJ 07503
Provides comprehensive healthcare services, including bone marrow transplantation, cardiac diagnosis and surgery, dermatology, dental care, dialysis, ENT services with a vocal clinic, emergency room services with a trauma center and grieving room, endocrine, gastrointestinal, hematology, infectious disease, neurological services, obstetrics and gynecology with genito-urinary, pre-conception, and high-risk obstetrics, oncology, ophthalmology, orthopedics, pathology, pediatric psychiatry, perinatal center, pulmonary, radiology, rehabilitative medicine offering speech, occupational, and physical therapy, renal clinic with end-stage renal disease services, rheumatology, speech and hearing evaluations and treatment, surgery including hand/plastic surgery, urology, and a voluntary psychiatric inpatient unit providing over-the-phone psychiatric emergency services.
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6925 Oakland Mills Road, Suite 701, Columbia, MD 21045
Provides disease-specific information and referral services for individuals affected by retinal degenerative conditions. Offers educational materials, newsletters, webinars, and conferences covering coping strategies, research updates, treatment options, and clinical trials. Supports individuals and families by connecting them to resources, including genetic testing and specialized services.
55 W Wacker Dr, Ste 1150, Chicago, IL 60601
Provides services dedicated to the prevention and control of childhood and adult lung disease including asthma, emphysema, and chronic bronchitis and the control of causal factors such as smoking, air pollution, and occupational hazards.