Resources for Families and Individuals | National Tay-Sachs and Allied Diseases Association (NTSAD)
2001 Beacon St, Ste 204, Boston, MA 02135
Eligibility
Open to all
Required documents
Required documents may include:
Proof of Identity (ID, birth certificate, passport)
Proof of Address (utility bill, lease)
Proof of Income (pay stubs, tax returns)
Medical, educational, and legal documents
Insurance, government assistance, financial, and employment records
Child support, disability, immigration, and veteran status
Social Security, tax, and housing records
Emergency contacts and community service documents
Hours
24 hours a day, 7 days a week
Call for information regarding specific program information
Office Hours Mon - Fri 9:00 am - 5:00 pm EST
617-277-4463
Voice·
Main Phone
Email[email protected]
Application process
Must completed the First Connections form - NTSAD
Fees
None
Service area
United States
Provides practical information and tools to help cope with a rare diagnosis. Offers support services to individuals and families affected by these diseases such as talk support groups, developing care plans, providing care tips, research and clinical trial information.
Providing organization
National Tay-Sachs and Allied Diseases Association (NTSAD)
Offers information, resources, and support to individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases. Supports research, carrier screening, prenatal testing, and raise awareness of rare genetic diseases.