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Provides personalized support, information, resources, and connections for individuals and families affected by Tay-Sachs, Canavan, GM1, and Sandhoff diseases
Provides HIV-related health education to clients, support groups, schools, faith-based organizations, local agencies, and the community.
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Offers information and resources on Frontotemporal Degeneration to caregivers, healthcare professionals, and the public through its website and helpline, including information on treatment, support, and advocacy.
Provides information and referrals relating to cancer and cancer treatment.
Provides educational resources on kidney and urological disease for patients, families, and professionals. Services include peer support line, information on dialysis, nutrition, organ donation, and a health guide.
Hosts an online database with information on various rare diseases. Individuals can access reports on symptoms, causes, treatments, clinical trials, and assistance programs. Each report contains a list of references and sources to cite information.
Allows individuals to exchange used syringes for new ones. The program also allows clients to get other supplies and information/referrals as needed.
Provides information and education on the development of blind and visually-impaired children. Families may receive telephone support and network with other families. Also sponsors seminars, trainings, meetings, and social events.
Provides individuals diagnosed with blood cancer support resources and educational information. Resources include: access to information specialists; support groups; caregiver, peer-to-peer, and financial support; a patient community, online chats, and a podcast; nutrition consultations; and clinical trials. Also conducts research on cures.
Provides weekly blood pressure screening, workshops and lectures on health and wellness, and serves homemade, hot meals four days a week. The Kip Center is also open on Saturdays, offering classes, programs, events, and activities.
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Provides a long-standing heritage of addressing the needs of people who are blind or visually impaired. This includes those with multiple disabilities or chronic medical conditions.
Provides a web-based resource center that provides cancer educational material for newly diagnosed cancer patients and their families. Allows users to better understand risks and be prepared.
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Provides a structured program that supports individuals with hypertension in monitoring and managing blood pressure through regular self‑tracking, education, and coaching. Delivers tools, guidance, and follow‑up support to promote healthy lifestyle changes and improved blood pressure control.
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Provides an online resource for education, awareness, and mutual support for those affected by depression, their families and friends, and those who think they might suffer from depression.
Provides a structured program that supports individuals with hypertension in monitoring and managing blood pressure through regular self‑tracking, education, and coaching. Delivers tools, guidance, and follow‑up support to promote healthy lifestyle changes and improved blood pressure control.
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Provides services that include support groups for consumers and families. This includes information on how to access mental health resources, advocating for improvements via legislation, and a 12-week family education program.
Provides comprehensive information and education about diabetes for individuals with prediabetes, diabetes, health professionals, educators, and the general public. Resources and learning materials are accessible through the organization’s website.
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Provides public health education to help reduce the risk of Sudden Infant Death Syndrome (SIDS). Also hosts a support group for affected families.
